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Table 2 Community interaction to develop the eat move sleep study, by year

From: Engaging communities to inform the development of a diverse cohort of cancer survivors: formative research for the eat move sleep study (EMOVES)

2018

Hired community outreach coordinator (GA)

Submitted early proposal for pilot funding on UCSF open proposal system (Diversifying Electronic Cohort Research at UCSF—A community-engaged contest to select and support a diverse “eCohort” at UCSF; not funded, but initial feedback received from community stakeholders)

First presentation made to Helen Diller Family Comprehensive Cancer Center Community Advisory Board (HDFCCC CAB) on study idea; developed into postcard project (see Fig. 2)

2019

Study name suggestions solicited from research team, with request for comments; “Eat Move Sleep” (EMOVES) study name selected

Received 1-year pilot funding to assess feasibility and acceptability of online enrollment of under-represented individuals with cancer into a cancer survivors’ cohort, with focus on African American people with prostate cancer

Presented to Abundant Life Faith Committee introducing EMOVES and future interview plans

Interviews (Phase I)

Men’s Health Committee (MCH) of the CAB voted on EMOVES logo (via Office of Community Engagement (OCE) Director email blast/Qualtrics survey)

2020

OCE helped identify dedicated EMOVES study community advisors; organized 1st community advisory call*

Requested/received feedback from OCE Director and Community Education and Outreach for Urologic Cancers Chair on the idea of a study video

Presented study slides and concept for video to CAB

Videographer referred from OCE brought onto project to create study ad

2021

Prostate Cancer Advocate (MHC, Friends of Frank Committee; referred from OCE/CAB) brought into project (narrator for video ad)

Feedback from CAB on video, feedback used to update/revise ad

Interviews (Phase II)

Final video ad posted on study landing page, HDFCCC YouTube, and OCE website

  1. EMOVES eat move sleep study, MHC Men’s Health Committee, OCE Office of Community Engagement, CAB Community Advisory Board
  2. *Study Advisors include: M. Shaw (CAB, MHC), M. Molino Saucedo (Cancer Resource Centers of Mendocino, CAB), R. Hernandez (United in Health/COVID work), W. Yu (United in Health/COVID work)