Table 2 Summary questions in the envelopes at the children and young people’s workshop
No | Topic/summary question |
|---|---|
Family, friends and pets | |
1 | How can we make sure children and young people can still do the things they want to do with their friends and family (like playing sports and going on holiday)? |
2 | What can hospital staff do to make sure children and young people feel involved when their brother or sister is in hospital? |
3 | How can we make the most of open visiting so other family members can be more involved?a |
4 | How can we make sure all children and young people can see all family members when they are hospital? |
5 | What are the best ways to spread awareness to help friends and classmates understand the reality of cancer? |
6 | How can we help children and young people to stay connected with friends and keep their relationships strong during treatment and afterwards? |
7 | What are the best ways to help children and young people to keep in contact with family and friends when they are in hospital? |
8 | How can we make it so children can meet and interact with their pets when they are in hospital? |
9 | How can we help more children to see therapy animals when they are in hospital? |
Treatments and medicines | |
10 | How can we make the experience of having injections (needles) better for children and young people? |
11 | How can we make the experience of taking medicines better for children and young people? (including having the choice of tablets or liquid medicine) |
12 | How can we help children and young people to have as much time at home as possible instead of being in hospital? |
13 | What treatments work the best for children and young people to make them better? |
Being poorly, side effects and long-term effects | |
14 | How can we help children and young people when treatment changes the way they look? (like when they lose their hair) |
15 | What helps children and young people when they are feeling poorly? |
16 | Can we find ways to use treatments that make children and young people feel less poorly? (like feeling less sick, not feeling weak) |
Being in hospital | |
17 | How can we make being in hospital a better experience for children and young people? (like having better food, internet, visitors, toys) |
18 | How can play and distraction help children and young people with procedures? (like having something else to think about or do when having scans and cannulas) |
19 | What can hospital staff do that helps children and young people to feel well looked after in hospital? |
Emotions, worries and getting help or support | |
20 | What are the best ways to help children and young people with their worries and make them feel happier? |
21 | How can we help and support children and young people after treatment has finished? |
22 | What are the best ways to help families with their worries when a child or young person is poorly? (including brothers, sisters, parents and grandparents) |
23 | How can we help children to meet other children and young people who are poorly like them? |
School and education | |
24 | How can we help children and young people to go to school or nursery during and after treatment? |
25 | How can we help children and young people to keep up with schoolwork when they are poorly or in hospital? |
Getting the information you need | |
26 | How can we give children and young people the information they want about their illness and treatment in a way that they understand it? |
27 | What do children and young people need to know about who can help them and their family? (including how charities can help them) |
28 | How can hospital staff help children and young people to be involved in decisions about them in the way they want to be? |
29 | How can we help children and young people to talk with their friends and family about their illness? |
30 | How can we help people to understand about disabilities that you can’t see? |
31 | How can we give children and young people the information they want about their brother or sister’s illness and treatment in a way that they understand it? |