| Clinical trial network survey (n = 25) | Trial survey (n = 13) | Consumer survey (n = 27) |
---|---|---|---|
Researcher role | – |  | – |
 CEO/Chair/director |  | 4 (31%) |  |
 Research manager/program manager/project officer |  | 5 (38%) |  |
 Principal investigator |  | 1 (8%) |  |
 Trial coordinator |  | 2 (15%) |  |
 Steering committee member |  | 1 (8%) |  |
Has ever involved consumers in research? |  | – | – |
 Yes | 19 (76%) |  |  |
 No, and no plans at present | 2 (8%) |  |  |
 No, but plans in future | 4 (16%) |  |  |
Method of invitation to participate as a consumer | – | – |  |
 Direct invitation |  |  | 14 (52%) |
 Expression of interest |  |  | 7 (26%) |
 Other |  |  | 6 (22%) |
Consumer role | – | – |  |
 Patient or carer |  |  | 9 (60%) |
 Attendee of support group |  |  | 1 (7%) |
 Clinical trial participant |  |  | 1 (7%) |
 Other |  |  | 4 (27%) |
 Not answered |  |  | 12 |
Consumer type | – | – |  |
 Patient, potential patient, carer or person using health service |  |  | 7 (26%) |
 Consumer representative |  |  | 9 (33%) |
 Both |  |  | 11 (41%) |
Have participated in a clinical trial | – | – |  |
 Yes |  |  | 5 (19%) |
 No |  |  | 22 (81%) |
Length of involvement in research, years, median (min, max) | – | – | 4.75 (0.5 to 28) |