Table 4 A summary of the BRIGHTLIGHT programme of research
Aspect of evaluation | Study design |
|---|---|
Workstream 1: What is specialist care? | |
Identify the competence of healthcare professionals delivering care to TYA | International e-Delphi study [31] |
Describe the culture of TYA cancer care and define ‘age-appropriate care’ | Multi-case study across 4 networks of care (involving 24 NHS Trusts in England) [21] |
Develop a measure quantifying access to specialist TYA cancer care | Analysis of NHS HES Admitted Patient Care data |
Workstream 2: Does specialist care make a difference | |
Determine the outcomes associated with TYA cancer care | Longitudinal cohort study using a bespoke survey [23] administered 5 times over 3 years from 6 months after diagnosis |
Determine carers experience of TYA cancer care | Unmet needs questionnaire administered to young people’s main carer nominated at wave 1 |
Workstream 3: How much does specialist care cost? | |
Calculate the cost of TYA cancer care | Young person administered health economics questionnaires for out of pocket costs, analysis of clinical and HES data |