Involving young people in BRIGHTLIGHT from study inception to secondary data analysis: insights from 10 years of user involvement

Table 1 Chronology of BRIGHTLIGHT patient involvement

Year	Activity
2008	Core Consumer Group (CCG) present at Find Your Sense of Tumour (FYSOT)
2009	Essence of Care study begins
	CCG conduct peer-to-peer interviews
	CCG conduct data analysis
	CCG member assists with facilitating professional workshop
2010	CCG conduct second consultation at FYSOT
	CCG present at Plenary Session National Cancer Research Institute (NCRI) Conference
	CCG present at INVOLVE conference
2011	CCG present Essence of Care results at FYSOT
	Workshop to present Essence of Care results back to CCG and study participants
	Workshop to create study name: BRIGHTLIGHT
2012	BRIGHTLIGHT logo launched
2012	Focus groups to develop the BRIGHTLIGHT survey Young Advisory Panel (YAP) workshop to develop the website
2013	YAP workshop on access to research
2013	YAP instigate launch of Twitter
2014	YAP member interviewed by BBC5 Live Radio
	YAP members create video of information sheets
	YAP workshop on study retention
	BRIGHTLIGHT public and patient involvement and engagement (PPIE) featured in the NCRI newsletter
	YAP present at FYSOT
2015	BRIGHTLIGHT featured in INVOLVE newsletter
	YAP workshops - generating hypotheses, and body image and sexuality
	YAP launch new website
2016	YAP workshop on online information needs
2016	YAP member presents at NCRI Conference Schools Session
2017	Begin production of dissemination play, There is a Light
	Opening night of There is a Light at the S!CK festival
	YAP co-chair the joint TYAC-BRIGHTLIGHT conference
	YAP workshop on sexuality

CCG Core Consumer Group, FYSOT Find Your Sense of Tumour, NCIN National Cancer Intelligence Network, NCRI National Cancer Research Institute, PPIE public and patient involvement and engagement, RCN Royal College of Nursing, YAP Young Advisory Panel

ISSN: 2056-7529