| Projects (Grant applications) | Projects with evidence of PPI in developing the grant application (N = 200) | Projects with evidence of plans for PPI during the study in the grant application (N = 200) | Projects (Annual/ Final Reports)a | Projects with evidence of PPI reported in annual/final reports (N = 181) | ||||||||
---|---|---|---|---|---|---|---|---|---|---|---|---|---|
 | n | (%) | n | (%) | (Relative %)b | n | (%) | (Relative %)b | n | (%) | n | (%) | (Relative %)c |
All Projects | 200 | (100) | 47 | (23.5) | Â | 113 | (56.5) | Â | 181 | (181) | 83 | (46.1) | Â |
Study Design | |||||||||||||
 Mixed methods | 47 | (23.5) | 15 | (7.5) | (31.9) | 30 | (15.0) | (63.8) | 39 | (21.5) | 24 | (13.3) | (61.5) |
 Qualitative | 36 | (18.0) | 9 | (4.5) | (25.0) | 23 | (11.5) | (63.9) | 30 | (16.6) | 17 | (9.4) | (56.7) |
 Longitudinal cohort | 29 | (14.5) | 5 | (2.5) | (17.2) | 18 | (9.0) | (62.1) | 29 | (16.0) | 11 | (6.1) | (37.9) |
 Intervention trial | 25 | (12.5) | 6 | (3.0) | (24.0) | 15 | (7.5) | (60.0) | 23 | (12.7) | 14 | (7.7) | (60.9) |
 Systematic reviews | 17 | (8.5) | 2 | (1.0) | (11.8) | 7 | (3.5) | (0.0) | 17 | (9.4) | 2 | (1.1) | (11.8) |
 Retrospective cohort | 13 | (6.5) | 2 | (1.0) | (15.4) | 4 | (2.0) | (30.8) | 13 | (7.2) | 3 | (1.7) | (23.1) |
 Secondary analysis | 8 | (4.0) | 0 | (0.0) | (0.0) | 4 | (2.0) | (50.0) | 8 | (4.4) | 3 | (1.7) | (37.5) |
 Cross sectional | 7 | (3.5) | 4 | (2.0) | (57.1) | 3 | (1.5) | (42.9) | 7 | (3.9) | 4 | (2.2) | (57.1) |
 Methodological | 5 | (2.5) | 1 | (0.5) | (20.0) | 4 | (2.0) | (80.0) | 4 | (2.2) | 1 | (0.6) | (25.0) |
 Case control | 4 | (2.0) | 0 | (0.0) | (0.0) | 1 | (0.5) | (25.0) | 3 | (1.7) | 0 | 0 | (0.0) |
 Multi-stage studyd | 4 | (2.0) | 2 | (1.0) | (50.0) | 2 | (1.0) | (50.0) | 2 | (1.1) | 2 | (1.1) | (100) |
 Individual participant meta analysis | 3 | (1.5) | 0 | (0.0) | (0.0) | 1 | (0.5) | (33.3) | 2 | (1.1) | 1 | (0.6) | (50.0) |
 Othere | 2 | (1.0) | 1 | (0.5) | (50.0) | 1 | (0.5) | (50.0) | 4 | (2.2) | 2 | (1.1) | (50.0) |
Health Condition Under Study | |||||||||||||
 General Health | 28 | (14.0) | 9 | (4.5) | (32.1) | 14 | (7.0) | (50.0) | 22 | (12.2) | 9 | (0.0) | (40.9) |
 Cardiovascular | 27 | (13.5) | 4 | (2.0) | (14.8) | 16 | (8.0) | (59.3) | 28 | (15.5) | 10 | (5.5) | (35.7) |
 Mental Health | 21 | (10.5) | 5 | (2.5) | (23.8) | 12 | (6.0) | (57.1) | 17 | (9.4) | 11 | (6.1) | (64.7) |
 Cancer | 16 | (8.0) | 7 | (3.5) | (43.8) | 8 | (4.0) | (50.0) | 16 | (8.8) | 10 | (5.5) | (62.5) |
 Metabolic and Endocrine | 14 | (7.0) | 1 | (0.5) | (7.1) | 6 | (3.0) | (42.9) | 16 | (8.8) | 9 | (5.0) | (56.3) |
 Musculoskeletal | 14 | (7.0) | 3 | (1.5) | (21.4) | 6 | (3.0) | (42.9) | 13 | (7.2) | 6 | (3.3) | (46.2) |
 Respiratory | 13 | (6.5) | 3 | (1.5) | (23.1) | 6 | (3.0) | (46.2) | 12 | (6.6) | 5 | (2.8) | (41.7) |
 Multimorbidity | 7 | (3.5) | 0 | (0.0) | (0.0) | 1 | (0.5) | (14.3) | 8 | (4.4) | 3 | (1.7) | (37.5) |
 Stroke | 7 | (3.5) | 1 | (0.5) | (14.3) | 3 | (1.5) | (42.9) | 5 | (2.8) | 2 | (1.1) | (40.0) |
 Infection | 5 | (2.5) | 1 | (0.5) | (20.0) | 3 | (1.5) | (60.0) | 5 | (2.8) | 1 | (5.0) | (20.0) |
 Renal and Urogenital | 5 | (2.5) | 2 | (1.0) | (40.0) | 5 | (2.5) | (100) | 5 | (2.8) | 3 | (1.7) | (60.0) |
 Reproductive Health and Childbirth | 5 | (2.5) | 2 | (1.0) | (40.0) | 5 | (2.5) | (100) | 5 | (2.8) | 4 | (2.2) | (80.0) |
 Neurological | 3 | (1.5) | 0 | (0.0) | (0.0) | 3 | (1.5) | (100) | 1 | (0.6) | 1 | (0.6) | (100) |
 Cancer, Mental Health | 1 | (0.5) | 1 | (0.5) | (100) | 0 | (0.0) | (0.0) | 1 | (0.6) | 1 | (0.6) | (100) |
 Inflammatory and Immune System | 1 | (0.5) | 0 | (0.0) | (0.0) | 0 | (0.0) | (0.0) | 0 | (0.0) | 0 | (0.0) |  |
 Oral and Gastrointestinal | 1 | (0.5) | 0 | (0.0) | (0.0) | 0 | (0.0) | (0.0) | 1 | (0.6) | 0 | (0.0) | (0.0) |
 Skin | 1 | (0.5) | 1 | (0.5) | (100) | 1 | (0.5) | (100) | 1 | (0.6) | 1 | (0.6) | (100) |
 Otherf | 31 | (15.5) | 7 | (3.5) | (22.6) | 24 | (12.0) | (77.4) | 23 | (12.7) | 8 | (4.4) | (34.8) |
Study population | |||||||||||||
 Patients | 134 | (67.0) | 26 | (13.0) | (19.4) | 68 | (34.0) | (50.7) | 123 | (68.0) | 54 | (29.8) | (43.9) |
 Patients & HCPs | 37 | (18.5) | 11 | (5.5) | (29.7) | 24 | (12.0) | (64.9) | 31 | (17.1) | 20 | (11.0) | (64.5) |
 Healthcare professionals (HCPs) | 15 | (7.5) | 5 | (2.5) | (33.3) | 10 | (5.0) | (66.7) | 8 | (4.4) | 3 | (1.7) | (37.5) |
 General public | 13 | (6.5) | 5 | (2.5) | (38.5) | 10 | (5.0) | (76.9) | 15 | (8.3) | 7 | (3.9) | (46.7) |
 Carers | 1 | (0.5) | 0 | (0.0) | (0.0) | 1 | (0.5) | (100) | 1 | (0.6) | 0 | (0.0) | (0.0) |
Study population age | |||||||||||||
 Unspecified | 93 | (46.5) | 19 | (9.5) | (20.4) | 54 | (27.0) | (58.1) | 83 | (45.9) | 35 | (19.9) | (43.4) |
 Adult (18+ years) | 89 | (44.5) | 24 | (12.0) | (27.0) | 50 | (25.0) | (56.2) | 83 | (45.9) | 42 | (23.2) | (50.6) |
 Adult and Children | 11 | (5.5) | 4 | (2.0) | (36.4) | 7 | (3.5) | (63.6) | 9 | (5.0) | 5 | (2.8) | (55.6) |
 Children and young adults (0–17 years)g | 7 | (3.5) | 0 | (0.0) | (0.0) | 2 | (1.0) | (28.6) | 6 | (3.3) | 1 | (0.6) | (16.7) |