Table 3 Additional examples of how aspects of research design were influenced by PPI input
Consideration | Design feature prompted by PPI input |
|---|---|
Design of recruitment poster and materials | Culturally neutral without human representation |
Data confidentiality and safety | Explicit descriptions of data protection and confidentiality measures in patient information sheet |
Interviewer style, training | A personalized but professional manner was developed, to try to make the interviewee feel that their individual story was highly valued |
Gender preference | Provision was made for interviewees to have a male or female interviewer, whichever they preferred |
Consent form | Own copy to be supplied to participant (with thank you letter) |
Location of interviews | Opportunity provided to conduct interviews at city centre location familiar to potential participants |
Post interview materials | Thank you letter for participation |