Table 1 A description of collaborators attending the focus groups

Volunteer 1 is a male in his 70s whose mother died of Alzheimer’s disease. His daughter’s mother-in-law developed Lewy body dementia.

Volunteer 2 is a male in his 50s and had a stroke at the age of 39. His father has dementia.

Volunteer 3 is a male in his 70s who is a retired teacher. His wife is a manager of a care home, and his mother had a stroke leading to poor cognitive function. He also belongs to a writers group.

Volunteer 4 is a female in her 60s. Her father died with dementia and her mother had a stroke.

Volunteer 5 is a female in her 80s currently experiencing memory problems and took part to find out what she could do to improve her memory and how she can help others.