Suggested interventions | Illustrative quotes |
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Peer support | 1. You can just offer that it exists. Just to know it exists. Then you yourself can decide if you want [to meet others with experience]. (Mother 1) |
2. The Swedish Childrens Heart Association [patient organization], they should also help with this. And unfortunately you get, you usually get all the information and everything after the child has been born. (Father 2) | |
3. I think that contact where you can ask questions is good. And it doesn’t have to be a meeting in person. But there is also this Facebook page where everyone can ask questions, there are a lot of people who reply. You have a lot of thoughts and questions. (Mother 3) | |
4. I would think before the first two weeks would be good maybe [to meet peers], because then you have… Mentally prepared, I think. (Father 1) | |
5. Afterwards [after the termination] I would like to talk to someone who has gone through a similar experience. That would be very beneficial. (Female 1, pregnancy termination) | |
6. I wanted to hear others who had gone through this, how things had gone for them afterwards, there were a lot of question marks. (Female 2, pregnancy termination) | |
7. It was a wish I had. I would have liked, perhaps not exactly in the heat of the moment when things were at their worst, but after a while [to have talked with peers]. (Female 3, pregnancy termination) | |
Additional professional psychosocial support | 1. And perhaps if you can get help afterwards, like counselors who help you with everything, both your soul and paper and social insurance and whatever. (Mother 2) |
2. Perhaps a telephone number you can ring 24Â h a day, that is irrespective of what questions you have on your mind. (Father 2) | |
3. When you go through these kinds of things, the least you should be offered is to talk with a social worker. And by that I mean to really talk, not just to sit down for fifteen minutes. (Female 1, pregnancy termination) | |
4. I received really good help. I had a doctor who informed us that our fetus had this heart defect and who followed us the whole way and who even also phoned us afterwards and made an appointment for a talk, a little follow-up talk, how things are now, do you experience. So I experience that I have received that for my part. And it was worth a lot. I hope that everyone receives that. The support… (Female 3, pregnancy termination) |