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Table 3 Lack of involvement of young people in Rheumatology research – From BSPAR survey data

From: Study protocol: Determining what young people with rheumatic disease consider important to research (the Young People’s Opinions Underpinning Rheumatology Research - YOURR project)

Nature of involvement

% not involved

Setting research agendas

80 %

Development of protocols

64 %

Design of interventions

60 %

Membership of advisory boards

64 %

Dissemination of results

60 %

As co-researchers

80 %

Recruitment of research staff who will have direct contact with young people

80 %