Table 1 Framework of themes developed from the data

Input in regard to appropriate terminology

Developing interventions

Ensuring clarity/user friendliness of written information

Ensuring appropriate outcomes

Acceptability of data collection methods/tools

Alerting to potential ethical/patient safety issues

Advice regarding research processes such as recruitment/drop out/follow up

During study

Ensuring research conducted with sensitivity/empathy

Sharing experiences/emphasising value of individual experiences in study

Planning/designing public involvement

Prior to study commencing

Recruitment to public involvement event

Timing

Venue

Training/support

Payment

Format of sessions

Facilitation skills

During study

Training/support

Recruitment to study advisory groups

Payment

Contacting members

Commitment/burden

After study

Feedback to members on outcome/findings

Role of public members

Prior to study commencing

Proposal development

Co-applicant

Feedback on accessibility of language

Intended during study

Advice

Public panel

Project steering group/management panel

Scrutinise conduct of research

As patient interviewers

Involvement in analysis and interpretation

Review of documentation to be used

Assist with ethical approval documentation

Consult regarding any issues regarding recruitment/involvement

Help with any developing or evolving issues

Intended after study

Assist with dissemination

Assisting with writing up findings

Assist with translation into practice

Valuing public member contributions

Recognising expertise of members

Feeding back

Value for public members